Monday, February 10, 2014

Wegener's Granulomatosis

Since I started this blog I have discovered a wonderful Forum with all really friendly people with Wegeners. They use all sorts of abbreviations that I still don't have a complete grasp of - like they call themselves 'Weggies', while 'Pred' is Prednesone (a type of steroid) - but it is a place where you can talk to people who have had what you have or are going through the same medical procedure. I discovered that much of the material I had found was so out of date. You don't have to die in five years and there are lots of different treatments. So until I catch up a little more and get on track I think I will leave my blog except maybe to write a few of my adventures with WG. As far as the people on the forum are concerned, you would think that they would be all down and depressing but they aren't, they are just the opposite. They are positive and they are helping to push me on through the hard times.
Meanwhile at home, of course, as far as I can, I will keep on riding my horse.

No comments: